• Ehlers Danlos Syndrome,  Relationships

    My pun-ny valentine

    It’s Valentines Day! Anyone that knows me knows I LOVE love. When ever anyone talks about how it’s a bit of a stink that I have EDS, I always say that life is kind to me in other ways. The biggest blessing of all being my lovely Husband, to whom I have been married for 3541 days today. We have been together for a long time now; We’ll be celebrating our tenth wedding anniversary this year! I still go a bit daft when I talk about him because he still makes me feel like the only person that matters in the world. That gave me an idea for a post,…

  • Ehlers Danlos Syndrome,  Relationships

    My coming out story

    There are many reasons I might feel anxious before I go out somewhere. Have I got enough stamina today? Is the place that I’m going to wheelchair friendly? Am I wearing enough braces? Do I have enough medication – wait, when did I last take some? What dose did I have? This particular day though, I was filled with extra trepidation because I would have to face “coming out” once again. If you know me, this probably seems a little weird. I came out years ago. Most people in my life at the time probably attributed as much weight to it as they did my Goth phase. 15ish years later,…