• Ehlers Danlos Syndrome,  Relationships

    Looking for trouble

    Most of the adjusting to living life with an acquired impairment is down to adaptation. This is achieved in a few simple steps: Identify the issue Ascertain the cause Think about how this could be avoided or at least mitigated Implement the adaptation With a condition such as mine, almost all of the ways I adapt things to decrease my pain and make my life easier are physical – but not all of them. Cope for the best Coping mechanisms are strategies that people use to help manage pain, both mental and physical. There are probably as many different coping mechanisms are there are people in the world. What works to…

  • Ehlers Danlos Syndrome,  Relationships

    My pun-ny valentine

    It’s Valentines Day! Anyone that knows me knows I LOVE love. When ever anyone talks about how it’s a bit of a stink that I have EDS, I always say that life is kind to me in other ways. The biggest blessing of all being my lovely Husband, to whom I have been married for 3541 days today. We have been together for a long time now; We’ll be celebrating our tenth wedding anniversary this year! I still go a bit daft when I talk about him because he still makes me feel like the only person that matters in the world. That gave me an idea for a post,…

  • Ehlers Danlos Syndrome,  Relationships

    My coming out story

    There are many reasons I might feel anxious before I go out somewhere. Have I got enough stamina today? Is the place that I’m going to wheelchair friendly? Am I wearing enough braces? Do I have enough medication – wait, when did I last take some? What dose did I have? This particular day though, I was filled with extra trepidation because I would have to face “coming out” once again. If you know me, this probably seems a little weird. I came out years ago. Most people in my life at the time probably attributed as much weight to it as they did my Goth phase. 15ish years later,…