• Disability,  Ehlers Danlos Syndrome

    Pretty Reckless

    Ways I have managed to dislocate my fingers this year: Changing the TV channel Rinsing a cucumber under the tap Getting dressed in the morning Eating an apple Opening a can of Coke Life is one big potential hazard assessing and monitoring tiny aspects of existence is exhausting. via GIPHY Here’s a little known fact: Inside my own house I walk more quickly than anywhere else, and often unaided. As soon as I step out of my front door, my movements are slower more deliberate and usually using either crutches or more often than not my wheelchair. Why? I know my house. I don’t like it much these days –…

  • Ehlers Danlos Syndrome,  Relationships

    Looking for trouble

    Most of the adjusting to living life with an acquired impairment is down to adaptation. This is achieved in a few simple steps: Identify the issue Ascertain the cause Think about how this could be avoided or at least mitigated Implement the adaptation With a condition such as mine, almost all of the ways I adapt things to decrease my pain and make my life easier are physical – but not all of them. Cope for the best Coping mechanisms are strategies that people use to help manage pain, both mental and physical. There are probably as many different coping mechanisms are there are people in the world. What works to…

  • Disability

    Fighting every step of the way

    I’m still pretty new to this being disabled stuff. Somethings have quickly become the norm, like finding out that somewhere that somewhere doesn’t have suitable access. Every now and then I come across something that is completely unexpected . A nasty surprise What I couldn’t have imagined was finding out that my local district council has submitted plans to remove essential, irreplaceable disabled parking from the town centre. In very measured “PR” responses to criticism of their plans, South Somerset District Council maintains that the parking in Middle Street, Yeovil is simply being relocated. However, when the proposed new parking locations are further away than people with mobility issues are…

  • A sign for a toilet door showing 2 simple figures that need to use the loo
    Disability,  Ehlers Danlos Syndrome

    I want to pee alone

    I want to pee alone Childless and halfway to 60, it was a strange revelation to have. A simple phrase which communicates the frustration and desperation of young motherhood. I’d seen it so often shared by my Mummy friends on Facebook, and yet it applied to me. This very same sentence perfectly epitomised one of the things I have found most difficult coming to terms with about becoming disabled. In the beginning… I left home at 18 chasing what was my biggest dream at the time; to be entirely self-sufficient. Not growing your own vegetables and living off the land. For me, it was moving from a family home where…